Disease Info
Advocacy
Fundraising
Research
Grab Bag
100

This organ is affected in up to 90% of sarc patients

Lungs / lungs and lymph nodes

100

What's the name of the organization that sent a guest speaker here to talk about advocacy today?

NORD - National Organization for Rare Disorders

100

What's the name of FSR's fundraising group?

Team KISS

100

Name two of FSR's research priorities.

Defer to Ginger

100

Where is FSR's Official Team KISS 5K this year?

New Orleans!

200

Approximately how many Americans live with sarcoidosis?

200,000

200

What's the easiest and most powerful way to get a legislator on your side?

Share your personal story

200

What's the easiest way to donate to FSR?

The big red "donate" button on the website.

200

What's the scan that shows inflammation light up like a Christmas Tree?

PET scan.

200

How many full-time FSR staff members are there?

7

300

What would show up in a biopsy that is a hallmark sign of sarcoidosis?

Noncaseating granulomas

300

What year was the ODA passed?

1983

300

What is the name of the organization that gets your donation (and passes them on to FSR) when you donate your birthday on Facebook? 

Network for Good

300

Name 2 ways patients can be involved in research

Defer to Kelli for answers

300

How many ambassadors did the program start with four years ago?

17

400

What two factors are most commonly researched as the causes of sarcoidosis?

Genetic predisposition and environmental exposure?

400

What percentage of rare disease do not have any FDA approved treatments?

95%

400

What's the name of the website platform FSR uses to host our fundraising pages?

Rallybound

400

Name the two advanced manifestations Dr. Culver mentioned in his presentation on Advanced Sarcoidosis.

Neuro and cardiac

400

Name the 3 previous locations of the official Team KISS 5K.

Chicago

Nashville

Atlanta

500

What is the result of prolonged tissue inflammation?

Fibrosis

500

What does the Orphan Drug Act (ODA) do? (name 1 of the 4 points from the earlier presentation)

- Market exclusivity

-FDA user-fee exempt-on

-Orphan Drug Clinical Trials Grant Program

-Tax credit on clinical testing

500

Name 2 of the 6 main revenue sources for FSR.

Defer to Ginger for answers

500

What is the technology used for gene editing?

CRISPeR

500

Name the duo that founded FSR.

Andrea and Reading Wilson.

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