Defining Caregiving
What is caregiving?
Unpaid support/assistance provided by family or friends.
What is the biggest challenge reported by caregivers?
Interacting with HCPs and navigating complex systems.
Give one positive aspect of caregiving.
Meaningful time, accomplishment, or enriched relationships.
What type of approach should nurses take: patient-centred or caregiver-centred?
Both - caregiver-centred integrated with patient care.
What do caregivers often struggle with then navigating the system?
Accessing resources and coordinating services.
Care providers are paid HCPs.
Name one factor that contributes to caregivers feeling overwhelmed.
Multiple roles, demands, lack of preparation, or disrupted routines.
What is a common emotional benefit caregivers report?
Feeling fulfilled by supporting their loved one.
Why is communication essential in caregiver support?
Why must nurses understand societal norms and stigma?
These factors influence caregiver experience and help-seeking.
What determines whether caregivers experience positive or negative stress?
How they perceive their ability to cope with stressors.
What makes caregiving in chronic illness especially difficult?
Uncertainty and the long, unpredictable trajectory.
What does it mean that "caregivers join the patient on the illness trajectory"?
They experience the illness progression alongside the patient.
What does "partnering with family caregivers" mean?
Involving them in assessment, planning, and care decisions.
What does "advocating for caregivers" mean in practice?
Speaking up for their needs during rounds or planning.
What is the best way to identify a family caregiver?
Ask if the person is willing and able to take on the role.
What type of support helps maintain caregiver normalcy?
Psychosocial support.
Why must nurses get to know caregivers as well as patients?
Caregiver needs reflect caregiving impacts and shape care plans.
What tool supports caregivers in identifying their needs?
The CSNAT (Carer Support Needs Assessment Tool).
Name one resource nurses might connect caregivers with.
Alzheimer's Society, Cancer Care, EI caregiving benefits, or community supports.
Why is the term "caregiver burden" avoided?
Because caregiving has both positive and challenging aspects, not only negatives.
What is a major long-term impact of caregiving on health?
Physical decline, depression/anxiety, or isolation.
What is one reason caregiver outcomes matter in palliative care?
Caregiver wellbeing directly influences patient wellbeing and safety.
What does "fostering caregiver resilience" involve?
Providing support, education, resources, and emotional validation.
Why is caregiver support crucial in chronic progressive illness?
The journey is long, intense, and caregivers are the backbone of care.