Prof Calhoun's Favorites
What soda is Prof Calhoun’s favorite: Sprite, Fresca, Diet Coke, Diet Pepsi ?
What is Diet PEPSI?
In medicine, this animal is the official symbol for rare diseases?
What is a ZEBRA?
In 2022, the Die Hard star retired from acting after being diagnosed with Aphasia?
Who is Bruce Willis?
Someone who has a lot of charisma
What is a RIZZLER?
To increase the "statistical power" of rare disease research, patients are encouraged to join this type of database to share their "Natural History" data.
What is a patient registry?
If the world was ending and there was only one tub of ice cream left in the freezer, which favorite flavor is Prof Calhoun going to steal and eat in the closet?
What is CHOCOLATE ice cream?
with heath bar mixed in :)
Approximately 50% of people affected by rare diseases belong to this demographic group.
What are children?
Known for her role is Cruel Intentions, this actress has been a vocal advocate for the rare disease community since sharing her 2018 diagnosis of Multiple Sclerosis?
Who is Selma Blair?
Something weird, cringey or odd
What is OHIO?
That haircut is so OHIO!
Advocates can use the Rare Action Network to contact these government officials to support bills like the ORPHAN Cures Act
Who are members of Congress or legislators?
You won't find the Professor swimming with Great Whites; she prefers her "Fins to the Left" with this Jimmy Buffett-inspired lager.
What is the beer LANDSHARK?
This revolutionary gene-editing research tool is being used to develop one-time "cures" for rare genetic blood disorders like Sickle Cell
What is CRISPR-Cas9?
This Modern Family star was born with Kidney Dysplasia and has undergone two kidney transplants, both generously donated by family members.
Who is Sarah Hyland?
bad mood, irritated, bitter or resentful
What is salty?
He's salty because his parents took away his car.
To increase the "statistical power" of rare disease research, patients are encouraged to join this type of database to share their "Natural History" data.
What is the RareND club?
Prof Calhoun’s Favorite Netflix series: Peaky Blinders, Schitts Creek, Shameless, Yellowstone, or Little Fires Everywhere
What is Schitts Creek?
A systematic approach to ensure that the "lived experience" of patients is captured and used by the FDA to evaluate the benefits and risks of a new drug.
What is Patient- focused drug development?
Who is the academy award winner singer who was diagnosed with Stiff Person Syndrome?
Who is Celine Dion?
This phrase means that you’re taking WAY too long and need to spit it out. It could also be an insult or a way to tell someone to be quiet.
What is “Just Put the Fries in the Bag, Bro"
These campus based groups (like ND or Penn) are led by student athletes (football players mainly) who coordinate experiences for rare local families such as the Lift for Life.
Who are Uplifting Athletes?
Prof Calhoun may exhibit a high gustatory threshold for sucrose over sodium, her final request for sustenance would be a dish whose name is the diminutive of the Italian word spago, meaning "twine" or "cord."
What is SPAGHETTI?
The landmark U.S. law that incentivizes the development of drugs for rare diseases.
What is the Orphan Drug Act?
He was McSteamy on Greys anatomy and recently passed away at the age of 57 from ALS
Who is Eric Dane?
To be significantly more attractive than someone (or so you think…)
What is MOG?
Students can help shorten this "Odyssey"—the average 5-to-7-year struggle to get a correct diagnosis—by learning to "think rare" when common symptoms don't move.
What is the diagnostic odyssey?