General Rare Disease
Advocacy
Rare Disease Day!
DMD
Zebra Trivia
100

This many Americans have a Rare Disease

What is 30 million?

100

NORD was founded...

When is 1983

100

Rare Disease Day is on...

What is February 29th? 

100

One in this many people is born with DMD

What is 1 in 5000?

100

There are this many species of zebra

What is 3?

200
Less than this many patients need to have a disease for it to be considered rare...
What is 200,000
200

The United States partners with this organization to support Rare Diseases

What is NORD

200

The Mascot for Rare Disease Day is

What is a Zebra 

200

Because DMD is an X-linked condition it primarily impacts what group of people...

What are boys?
200

Zebras skin is this color with this color stripes...

What is black with white stripes?

300

As of right now there are this many Rare Diseases known

What is 7,000-10,000

300

This legislative act was passed in the United States in 1983 to provide financial incentives for the development of treatments for rare conditions


What is the Orphan Drug Act?
300

The first year Rare Disease Day was celebrated

What is 2008?

300

About this many of all DMD cases occur due to a brand-new genetic mutation with no prior family history (a fraction)

What is 1/3?

300

Zebras can run this many miles per hour...

What is 40mph?

400

This percent of rare diseases are genetic...

What is 80%?

400

"RDI" stands for what in international rare disease advocacy...

What is Rare Diseases International 

400

Over this many countries Rare Disease Day is celebrated

What is 100 
400

People with DMD typically develop symptoms at this age...

What is 5 years old?
400

A group of zebras are called this...

What is a dazzle? 

500

What percent of Rare Diseases have an FDA-approved treatment option...

What is 5%?

500

To bridge the gap between regulatory approval and everyday clinical reality, the FDA partners with NORD to host what distinct, informal initiatives for the rare community?

What are patient listening sessions

500

Why is Rare Disease Day Celebrated on Leap Day?

What is Leap Day is the rarest day
500

The DMD gene holds the record as the largest known human gene, spanning this many million base pairs on the X chromosome

What is over 2 million (2.4)?

500
Zebras are thought to have stripes for this reason

What is to deter bugs?

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