Community Opportunity
From what point in the study should all partners be included?
From the beginning
Should consumables and services be sourced locally or imported?
Locally
What type of document should all involved parties agree upon and sign to set expectations regarding data ownership prior to starting the data collection process?
Contract
A university research team conducted a study in which participant identities were protected and it was determined that participants would not be harmed in any way during the study. The study was developed in partnership with local leaders to make sure community needs were being respected. The study results were then published only in the language of the research team, and the data was owned exclusively by the university. Ethical or equitable?
Ethical
It is important that the research is ________ to the community for which it is being designed to serve.
Relevant
We should aim to r______ the negative impact of research.
Reduce
Reducing negative environmental impact would be considered doing our “due ________”
diligence
A local NGO worked closely with community members to develop a study pertaining to maternal health, a major concern for this community. Ownership of data was shared, and leadership was shared among partners. Participant consent was assumed since community members helped develop the study. Ethical or Equitable?
Equitable
If one partnering institution from a lower-income country is expected to match financial contributions of a higher-income country in developing a research project, what could happen to the equality within the partnership?
Any answer explaining how this could damage the equality within the partnership is acceptable.
What does IRB stand for?
Institutional review board
One might have a patent, copyright, or trademark for this type of property which should be shared among collaborators.
intellectual property
A study is being developed by a team of Ottawa-based government researchers to address a health-related issue in a rural population in Quebec. The study is determined not to harm participants, and a thorough consent form is developed to ensure participants understand any risks and benefits involved in participating in this study. A translator is brought on the team to ensure study participants understand the researchers. Ethical or Equitable?
Ethical
What can an organization put in place prior to the start of research to help resolve conflicts as they arise throughout the study between research partners and researchers?
SOPs for conflict resolution
How much ownership should partners have over data produced from the study?
Depends! The amount agreed upon in discussions with the research team
What is one way an organization can foster an innovation culture so that the research leads to real results rather than just publications?
Providing finances
A patient partner came up with a research question pertaining to an issue they noticed in the healthcare system. They gain the interest of a local university research team who agrees to collaborate with them to design a study. They obtain ethics approval and begin working, the patient partner being involved throughout the process. They complete the study and share ownership of the data and authorship of the publication. Ethical or Equitable?
Trick Question: Both!