Definitions
List shared characteristics of CSHCN
Multiple visits to subspecialists, medication use, disabilities, insurance/finance issues, education accommodation needs
Name 2 components of a well-functioning health care system for children
family partnership, medical home, early screening, adequate insurance, easy access to services, preparation for adult transtion
Name 1 condition for which there are specific clinical care guidelines for primary care provided by the AAP
Trisomy 21, sickle cell, achondroplasia
How are children with medical complexity different from CSHCN?
Require complex daily care and services
Name 3 examples of diagnoses CSHCN may carry
Asthma, diabetes, autism, cystic fibrosis, JUA, CP, ADHD, Trisomy 21 (other genetic disorders), CHD, cancer, seizures
Describe 3 components of a medical home
Accessible, compassionate care, comprehensive care, continuous care, coordinated care, culturally competent care, family-centered care
True/False
During a WCC for a CSHCN, stick to following bright futures guidelines even if it means not addressing parents needs
False
True/False
20% of parents of CSHCN paid >$1000 in out of pocket health care costs in last 12 months
False
46%
Name 2 services needs of CSHCN?
Medical specialist, dental care, pharmacy, educational, behavioral health, home nursing
True/False
Receiving care within a medical home is associated with decreased family burden arranging/coordinating and providing health care, higher perceived quality of care, and increased likelihood of accessing preventive services for CSHCN
True
What should you include in care coordination updates at each visit?
Review all notes from specialists, document next visit with each subspecialist, update all medications/care plans/therapies based on specialist notes
True/False
Families of CSHCN may be eligible for supplemental security income
True
Depends on income and diagnosis. Link with SW, CM to help navigate this
True/False
A child is considered to have special health care needs if a health condition causes them to need physical therapy for at least 12 months.
True
What percent of CSHCN receive coordinated, ongoing, comprehensive care within a medical home?
42%
What is an emergency room letter?
Letter (often written by specialist) that family can bring anytime child is taken to ED including diagnosis, care instructions (labs, fluids, etc), on call contact information
What is included in a plan of care for a CSHCN?
Many things! Contact information, insurance, problem list, meds, etc. Family and patient goals. Upcoming visits/next appointment with you. Contact info for all subspecialists.
(Update with each visit/in between visits)