Communication
Ways you may communicate with your partner
Phone, text, email, video chat (any website)
Your partner wants to know if you think they should participate in the newest clinical trial.
Defer to the care team
Number of guide gatherings that each guide is required to attend per calendar year
Your partner is very tearful and/or emotional during more than one of your conversations.
Provide additional support resources like psychosocial oncology.
Psychosocial Oncology
Your partner calls multiple times in one day and one call is at 10 PM.
Return call at your earliest convenience even if the next day. You may also send a quick text. Discuss when you ARE available.
Your partner reported that they accidentally took an extra dose of their medication and asks what to do.
Encourage them to call their care team at their clinic immediately.
Time commitment that each guide is asked to give to the program
at least one year
FREE ANSWER (share your reflection statement)
Places to obtain valid diagnosis or treatment info
Who should take the lead in the peer relationship with scheduling and follow-up
GUIDE!
Your partner invites you to dinner with their family, as a way to show you thanks for their support.
What a big no-no
When guides receive program surveys
at 6 weeks during a match and every January
Your partner tells you their doctor has given them more than one choice of treatment options and they feel scared they will choose the wrong one.
FREE ANSWER (share your reflection)
where family members can rest, recharge, or get space to work at the James
Patient & Family Resource Center
How often a guide should reach out to a partner (minimum)
once a month
Your partner is hospitalized and requests a visit from you.
Not currently allowed due to COVID precautions
See link on "resources" tab in portal and review.
Your partner expresses that they feel like it would all be better if they weren't alive anymore. They then express that they think about "ending it all".
Provide the crisis hotline number and/or encourage them to visit their nearest ER immediately to talk with a RN or social worker. Then call HOPE program manager.
"Caregivers and Coffee" support group, patient education online for various topics including anticipatory grief, H.O.P.E. match with another caregiver, all JCFL classes
Your partner would like to meet in person. They have been vaccinated and are comfortable wearing a mask.
Politely explain that the program is asking that matches do NOT meet in person right now, but suggest a video chat.
Your partner expresses that they feel like it would all be better if they weren't alive anymore. They then express that they think about "ending it all".
Provide the crisis hotline number and/or encourage them to visit their nearest ER immediately to talk with a RN or social worker. Then call HOPE program manager.
Deadline for completing session logs
Trick question! No deadline, but please complete within a few days. PM pulls data for reports regularly.
Your partner reports that they are entering into hospice care
Contact PM to inform her and discuss the match.
Which JCFL programs are currently held in person
None :)