The current "period of performance" for the HRSA Hemophilia Award
What is June 1, 2022 - May 31, 2027?
The name of the CDC HTC Program
What is the Community Counts Public Health Program?
Where you can find all US HTCs, key HTC personnel and contact information
What is the CDC HTC Directory?
The name of the program that requires drug manufacturers to provide covered outpatient drugs at at significantly reduced prices generating program income
What is the 340B Drug Pricing Program?
Susan's favorite things (family excluded)
What are dogs?
the name of the department and division of the Regional Hemophilia Network within HRSA
Maternal and Child Health Bureau, Division of Services for Children with Special Health Needs
The three parts of the CDC Grant
1. HTC Population Profile 2. The Registry 3. Mortality Reporting
This region has the largest number of HTCs
What is Southeast Region? (27!)
The term for organizations eligible to participate in the 340B Program, like HTCs and Federally Qualified Health Centers
What are covered entities?
Meaning "reason" in Japanese, this is Susan's dog's name
What is Suji?
The titles of the HRSA-representatives that Regions work with to oversee grant goals, deliverables and use of program income
What is the HRSA Project Officer and HRSA Grants Management Specialist?
The goal of the CDC Community Counts Program is to monitor ________ and other complications, ________ patterns, causes of __________, and other health indicators.
What are bleeding, treatment, and death?
Which 2 states have the most HTCs
What are California and Michigan? (11!)
What are "Foreign Travel," research and equipment?
Sent by HTCs to eligible patients every 3 years, this survey provides patient feedback on care received
What is the National HTC Patient Satisfaction Survey?
HRSA program objective: By May 2027, _________ by _________ % from baseline the number of underserved individuals who receive comprehensive care clinic visits.
What are increase and 10%?
Eligible participants in the CDC Community Counts Project
Who are people seen at US HTCs with a bleeding or clotting disorder or VTE?
The number of HTCs currently listed in the CDC HTC Directory
What is 143?
The name of the document that outlines financial oversight and responsibilities of Regions and HTCs
What is the Maternal and Child Health Bureau, Division of Services for Children with Special Health Needs National Monitoring Standards for the Regional Hemophilia Network Program?
The annual report that represents all "active" HTC patients in the calendar year
What is the HTDS Report? (Hemostasis and Thrombosis Report)
The names of each of the 8 HRSA regions
What are: New England, Mid-Atlantic, Southeast, Great Lakes, Northern States, Great Plains, Mountain States and Western States and Territory?
The top 2 diagnoses with the largest 10 year growth of patients recorded via CDC Population Profile forms 2014-2023
What are Ehlers-Danlos Syndrome and Factor I/Fibrinogen disorder? (207% and 171%!)
These 3 states each have 8 HTCs - the second largest number in the US
What are New York, Florida and Ohio?
Per the HRSA NOFO, HTCs are to add program income funds committed to the program or project to "further ________________"
What is "eligible project and program objectives"?
3 of 6 diagnoses added to the HTDS report in 2025