Ethics
Did Henrietta understand the procedures she underwent?
No
Henrietta did not fully understand her procedure. This was evidenced by Henrietta asking when she’d be better so she could have another child and not knowing until that moment that the treatments had left her infertile. She stated that, “if she had been told before, she would not have gone through with the treatment” (page 47- 48).
What is the name of the Baltimore Hospital that Henrietta received her cancer treatments?
John Hopkins
What race is Henrietta Lacks
African American
What is the name of the Henrietta’s daughter that worked with Rebecca to help her write about Henrietta’s story?
Deborah
What does it mean to be immortal?
Live forever, never die
What does informed consent mean?
permission granted in the knowledge of the possible consequences, typically that which is given by a patient to a doctor for treatment with full knowledge of the possible risks and benefits. (dictionary.com)
anything close to this is fine
What policies were influenced by Hela cells?
Privacy and consent (pg. 211)
Why are Henrietta’s surgical consent forms not labeled under “informed consent”?
She was not explained the risks/benefits
or
The paperwork was not specific to her case
What is the name of Henrietta's daughter that couldn't speak or hear who had developmental delays and was placed in Crownsville State Hospital?
Why did Henrietta’s family think her cells were so powerful? (p. 213-214)
Lord punishing her with cancer for leaving home/disease was the wrath of the Lord/disease-causing spirits
or
Something got up inside her/came alive in her/something came out of space and she walked over it
anything close is fine
Doctors were doing experiments on slaves. This is violating which ethical principles? (Ch 21)
Justice, non-maleficence, beneficence
What role do Hela cells play in scientific experimentation?
Scientific advances such as → vaccines, map genome, polio vaccine, genetic research, gone in space missions, used in atomic bomb testing (pg. 188)
Cancer research (Ch 7)
Mutation, telomeres
Why was the Lacks’ family afraid of being out after dark near the hospital?
They thought that staff would come into the streets and kidnap black people to do experiments on them
What was the initial relationship between Henrietta and her husband Day?
David aka “Day” Lacks is Henrietta’s first cousin.
Why did Leigh Van Valen suggest HeLa cells were no longer human? (p 216)
They are evolving separately from humans and are their own species and have given rise to tons of other cells.
How was segregation implemented in the medical system? (Ch. 8)
Labeled vials
Segregated hospital sections
Public clinics were mostly filled with African American patient
(willing to accept other answers if our team deems them correct)
What innovations came about when trying to culture Hela cells?
Standardized culture medium, sterilization processes/decontamination, lab protocols-sterility (Ch 4)
What people did hospitals use as a means to conduct clinical human studies? (Ch. 8)
Those in the public clinics, majority of those individuals were African American descent or unable to pay for medical treatment
Which one of Henrietta’s children converted to Islam and changed his name?
Joe lacks, changed his name to Zakariyya
How did Henrietta’s family find out she was “immortal”? (p. 179-181)
Bobbette Lacks (Lawrence’s wife) found out when visiting a friend. Her friend’s brother-in-law works with the HeLa cells in his lab in DC. By asking where she was from and her last name, he made a comment of the cells he works with. Bobbette ran home and told Lawrence, he called his father.
During the 1950s many doctors practiced what they referred to as “benevolent deception.” This is when they would withhold even the most fundamental information from patients and sometimes not give any diagnosis at all. By partaking in this practice, doctor’s imede on the patient’s ___________. (Page 63).
Autonomy
How did Scientists justify using patients from the public wards for research without their knowledge?
Many scientists believed that since patients were treated for free in the public wards, it was fair to use them as research subjects as a form of payment (page 30).
The way doctors withheld information to not upset or confuse their patients because “they knew best”. (Ch. 8) This is the definition for..
Benevolent deception
What was Henrietta Lacks’ birth name?
Loretta Pleasant
What did Deborah think happened in London with her mother’s cells? (p 237)
She thought there was a village of Henrietta’s walking around after a writer joked about clones of Henrietta in The Independent in London.