A group of people who regularly get together to discuss their experiences of the condition, share in its emotional challenges, and contribute social or practical help to each other.
What is a peer support group?
100
Organising of family information packs and family information evenings when a new baby is born.
What is information services and workshops?
100
Recreational activities such as family fun days
What are annual members events?
100
A subscription to a regular National members’ journal & e-mail
What is a newsletter?
200
Includes activities and exercises that help build motor skills, increase muscle strength, and improve posture and balance.
What is physical therapy?
200
Entails the assistance of a therapist who can help children develop the early skills necessary for communication. This includes imitating and articulating sounds.
What is speech-language therapy?
200
Involves finding ways to adjust everyday tasks and conditions to match a person's needs and abilities. The objective is to teach self-care skills such as eating, getting dressed, writing, and using a computer.
What is occupational therapy?
200
Entails trying to understand why a child is acting out, and creating strategies to preventing these situations from occurring. Involves teaching the child better ways to respond to situations.
What is emotional and behavioural therapy?
300
A check for visual behaviour, congenital cataracts, squint and refraction.
What is an eye check?
300
Test for antibodies and components of plasma
What is Thyroid blood test?
300
Encompases a full audiological review of he child
What is a hearing check?
300
Taking a echocardiogram forms one component of this test