Row 1
What foundation were the Odone's a part of?
The ALD Foundation
Do genetic diseases only affect one person?
No. In the movie, after Lorenzo's diagnosis, there were changes not only in Lorenzo's behavior but also in his parents specifically Michaela who turned "cold" or mean.
What was Lorenzo's genetic disease?
Adrenoleukodystrophy (ALD)
what does the ald support group help with?
Give finance ($)
Counseling such as decreasing depression and anxiety.
Giving a comfort stability.
How did Lorenzo catch this disease?
The disease was carried through his mother (Michaela Odone)
why is it important for people with ALD to be surrounded in support groups?
It is important that they don't feel alone and by themselves when going through something.
So that they can relate to what others are going through dealing with a genetic disorder.
Helping each other with different experiences also different treatments an diverse ways to treat each family .
What does ALD do?
It prevents the body from breaking down fatty acid chains, which damages the membrane that covers the nerve cells in the brain.
what are some examples of support groups of common genetic disorders ( at least two correct answers)?
-National Down Syndrome Congress, Genetic Alliance, National Down syndrome society, national organization for rare disorders, S.O.F.T (Support Organization of Trisomy 18,13, and related disorders.
What are some symptoms of ALD?
Vision loss, hearing loss, dysphagia (difficulty swallowing), & lack of balance to name a few
What does Lorenzo's Oil do?
Lorenzo's oil is used to treat an inherited disorder that affects the nervous system and adrenal glands