What are my typical symptoms everyday?
Fatigue, and cramps with normal everyday activity
What sports did Hannah do growing up?
Dance, cheer, basketball, tennis, and softball
What weather / season is harder for McArdles people to live and do normal things?
Winter!!! SNOWWWW
Who else in my family has Mcardles?
BONUS 100PTS - how old they are, and where they live
Hunter (22) Iowa
What does Hannah have to do to recover from bad muscle days?
Sleep, and drink a lot of water
What is McArdle Disease?
Its a genetic disorder that affects the muscles ability to break down glycogen to equally distort energy throughout the body.
How many times has Hannah thrown up in an airport?
Bonus points: 100 Pts if you can explain the stories
2 times
- Coming home from Egypt (Collin)
- Louisville airport coming back from deputation
What makes it possible for Hannah to workout?
Safely getting into the "second wind"
What muscle group is the hardest for Hannah to get into her "second wind"?
Arms
after a period of muscle fatigue, we start to experience improved stamina and reduced cramping during continued aerobic exercise.
It takes 5-10 min!
What does GSD5 stand for?
Glycogen Storage Disease Type 5
What country did Hannah feel the best with her muscles in? and why?
Vietnam!!!!!
Flat grounds, and easy digestible foods that helped my energy levels! (VEGGIES)
When was Hannah diagnosed with McArdles?
November, 2023
What are the signs that Hannah needs to go to the hospital?
nausea, vomiting shortness of breath, extreme fatigue, confusion, weakness, irregular heartbeat, or brown urine.
McArdles is very rare, about 1 person in every ____ has it.
100,000
Explain the key for 30 sec = 80%
30 seconds of rest means I get 80% of my energy back.
Explain the most traumatic story that happened to Hannah in Ukraine
I missed the bus...
What is the 6 second rule?
I can only do intense activity for 6 seconds at a time and then have to rest for 30 seconds
ex: opening a jar, holding something heavy, rushing up a flight of stairs
What is the only visible signal Hannah has to slow down?
High heart rate
Who is the McArdles legend, that has done the most research and dedicated his entire life to the science behind it all?? SAVING so many people's lives!!!
Andrew Walkin
What's the worst outcome that happens if I over do it? (why it is important to take care of myself)
Rhabdomyolysis which damages the muscle tissues causing kidney failure, or severe muscle damage. WHICH CAN BE FATAL lol
What was Hannahs most healing testimony with my muscles in Brazil?
The massive staircase with Gail
What day is national rare disease day?
February 28th!!!
What stresses Hannah out the most when it comes to McArdles and being a missionary?
Short layovers
What are the 4 R's to McArdles?
2. Respond
3. Recover
4. Resume