Abstract/Intro
Was this study qualitative or quantitative?
Qualitative
How was data for this study collected?
Interview format (focus group)
In table 1, How many groups were made up of only women?
5/9
The researchers mentioned having issues recruiting African Americans into research studies in this section, what did the researchers say the reason was for this?
Their data proved that mistrust from African Americans towards healthcare was caused by previous experiences like the Tuskegee experiment.
Fear that the DNA will be used later in criminal investigations to implicate innocent people.
11 focus groups
A barrier to research participation was mentioned in the text, what were the barriers?
Mistrust of researchers and the healthcare system
What was reported by the Institute of Medicine pertaining to racial disparities?
A lot of differences in care because of discrimination, both conscious and unconscious
What types of biomedical studies are African Americans less likely to participate in?
Invasive studies or clinical trials.
How many total participants were interviewed?
70 participants
Why did the groups express mistrust in Medical Research?
Since the research targeted African Americans there is the prenotation that they will be used as guinea pigs
What was the primary reason for this study?
Explore barriers between African American adults who live in mid-size urban cities and participating in medical research.
What do physicians lack that causes mistrust among African American patients?
Cultural diversity and competence
True or false: People with research experience were not included in the study.
False, both those with and without research experience were allowed to participate in this study.
Where did the mistrust stem from?
Tuskegee, people thought the men were being injected with syphilis but they actually weren’t being treated for having it
What were some of the solutions that were listed in the reading? (At least two)
1. Community-based participatory research (CBPR)
2. Community advisor board (CAB)
3. Small group info sessions co-led by researchers and community members
4. Encouraging contributions from community opinion leaders
Who is the lead author of this study/paper?
Darnell P. Scharff
What was the 3rd and final step of the data analysis?
Identifying significant themes that were discussed in the focus groups
Mistrust caused participants to limit the information they provided healthcare workers why?
Because they believed the information they provided would be used against them later
To start the process of gaining the trust of African Americans, what did the researchers mention investigators would need to do? (Answers may vary)
Researchers and practitioners need to acknowledge their roles in the development and continuation of disparities
Creating mechanisms to reduce mistrust, health disparities, and limited research participation will continue.