Market/NMSS Facts
How many people are living with MS in the United States?
Name 5 common MS symptoms.
- fatigue
- walking difficulties
- numbness or tingling
- spacticity
- weakness
- vision problems
- dizziness and vertigo
- Bladder problems
- Sexual problems
- Bowel problems
- Pain and itching
- cognitive changes
- emotional changes
- depression
what time of year does the Luncheon take place, and what time does the Dinner take place?
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What is a Partner in MS Care?
A Partner in MS Care is a program whereby the Society recognizes a healthcare provider for providing optimal, comprehensive care to their MS patients and who has an established relationship with the Society. The "Partner in MS Care" designation is not a certification, it is a title provided by the Society - a badge of recognition.
What is MS Breakthroughs?
How many board members are there and can you name three and the chair?
There are 31 board members. The chair is Tom Barden.
Tom Barden (Chair), Jamie Larsen (Vice Chair), Rick Anderson (Secretary), Alan Elser (Immediate Past Chair), Laurie Johnson (President), Joel Beherndt, Lindy Blevins, Chris Campbell, Marty Connell, Roxanne E. Davis, Paul Dressel, Chuck Edward, Rob Goldberg, Frederick “Beau” Gould, Gil Greenman, Nanette Hayre, Tom Herche, Steve Liffick, Peter Lyster, Eugene F. May, MD, Rainie McLaughlin, Margarita (Rita) Mills, Michael Nassirian, Scott Noe, Rachel Padgett, Carrie Delaney Rhodes, Al Smith, Alexi Varanko, Bob Vincent, Mike Walters, Annette Wundes, MD.
Name the different types of MS disease courses.
- Clinically Isolated Syndrome (CIS is a first episode of neurologic symptoms caused by inflammation and demyelination in the central nervous system. The episode, which by definition must last for at least 24 hours, is characteristic of multiple sclerosis but does not yet meet the criteria for a diagnosis of MS because people who experience a CIS may or may not go on to develop MS.)
- Relapsing-remitting MS (the most common disease course – is characterized by clearly defined attacks of new or increasing neurologic symptoms. These attacks – also called relapses or exacerbations – are followed by periods of partial or complete recovery (remissions)
- Secondary progressive MS (SPMS follows an initial relapsing-remitting course. Most people who are diagnosed with RRMS will eventually transition to a secondary progressive course in which there is a progressive worsening of neurologic function (accumulation of disability) over time.
- Primary progressive MS (PPMS is characterized by worsening neurologic function (accumulation of disability) from the onset of symptoms, without early relapses or remissions )
How many Walk MS events are in the GNW market and the number of Walks in each state?
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What should I do if I think someone would:
- make a good advocate OR
- state they are interested in advocacy OR
- state they are looking to get more involved with the Society outside of Bike/Walk?
Additionally, what qualities should I be looking for?
Talk with Seth! A good activist is a clear communicator, a fast learner, and can understand complex ideas and relate them to others in easy to understand language. A good activist does not have to be a policy person (wonk), have prior experience, nor be connected to government. If you live with MS you have a story and you can be an advocate.
Name the ways that people can connect to the MS Navigator team.
- Chat via the Society's website
- phone (1-800 number)
- email (via the website)
- online/fax referral form for healthcare providers
- MS Connection.org community discussion pages
Name two Society produced marketing tools you can use to spread awareness of MS and the Society.
Describe what a disease modifying therapy is and how many are currently on the market?
disease modifying therapies for MS have been found through clinical trials to reduce the number of relapses, delay progression of disability, and limit new disease activity . 17 are currently on the market.
Roughly how many volunteers were engaged in the Greater NW market in 2018?
1
This is a Society program which brings first-year medical students into an MS clinic to shadow and be mentored by an experienced MS provider for 4 weeks between their first and second year of medical school. The goal is to inspire students to pursue a career in MS.
What are the titles of the two main education programs we are running across the country this fiscal year for people with MS, and what are these program about?
Relationship Matters
This is designed to address the needs of couples affected by MS – featuring expert facilitators and practical strategies:
Pathways to a Cure
This program provides the latest information on multiple sclerosis research, progress, and what you can do now to impact your health and quality of life.
How many people with MS is the Society connected to in the Greater Northwest Market, and can you break that number down by state?
We have 19,391 people with MS listed in our datawarehouse that reside in the Greater Northwest Market.
1184 in AK
2053 in MT
781 in N. Idaho
18,406 in Washington
How is MS diagnosed?
No single test can diagnose MS.
In order to make a diagnosis of MS, the physician must:
For the Bike MS: Deception Pass Classic - what is the fundraising goal and the participant number goal?
1
What does advocacy work on at the state level?
At the state level advocacy works on:
Name at least three of the different teams that are included under the MS Navigator umbrella.
- Crisis team
- Healthcare Provider Referral team
- Benefits and Employment team
- Financial Assistance team
- Case Management team
- Intake and Assessment team
- Training team