Joining the NFED in 2008, he is the only male to work in the NFED office.
Who is Harry Ford?
100
In addition to nails, hair, skin and sweat glands, you'll need to bite your tongue not to shout out this 5th area patients with Ectodermal Dysplasia have to deal with.
What are teeth?
100
The Halloween Bash; Rally for Ally; Zach Hamm's Don't Sweat It Golf Tournament; Apple Classic Golf Tournament; Fore a Good Cause Golf Tournament, are important fund raisers for the NFED, as is this event where you can buy a chance to win a fabulous prize
What is the Annual Raffle?
100
The capital city of Colorado also sharing the last name of the singer of "Rocky Mountain High".
What is Denver?
100
Rhyming with “Birginia”, this was the state that hosted last years family conference.
What is Virginia?
200
Located in St Clair County, Illinois and with a 2000 Census count of 5659 people, this city also boasts the home of NFED.
What is Mascoutah?
200
Abbreviated HED
What is Hypohidrotic Ectodermal Dysplasia?
200
Also the sum of $16,000 X 2, this is the amount the NFED Raffle raised in 2010
What is $32,000?
200
County seat of El Paso County, Colorado, and host City to the NFED national conference.
What is Colorado Springs?
200
Number of days the conference runs.
What is 3?
300
This year saw the birth of Jessica Alba, Barbara Bush (first daughter), the Beastie Boys and NFED.
What is 1981
300
The more common, and easier to pronounce, name for Ankyloblepharon-Ectodermal Defects-Cleft Lip and Palate Syndrome.
What is Hay Wells Syndrome (also acceptable AEC)?
300
Treatment and Research
What are the majority of the funds raised spent on?
300
This mountain used to peak it's summit up as part of the Kansas Territory.
What is Pikes Peak?
300
Also the age of liaison Dee Dee Huxman, or so she tells us, this is the number of years the NFED has been having Family Conferences.
What is 29 years?
400
With a mother well known to all of us, he was the reason behind the development of the NFED.
Who is Charlie Richter?
400
Within a 10% margin of error, meaning you could be as much as 15 off, this is the approximate number of Ectodermal Dysplasia Syndromes currently identified.
What is 150?
400
Made possible by fund raising, this program provides funding for, Complex dental care, Dentures for children, Wigs, and Air Conditioners.
What is the Treatment Assistance Program?
400
Not the Army, Navy or Marines, this armed services academy is located here in Colorado Springs.
What is the Air force Academy?
400
Where the kids can go each day, and avoid hanging out with the adults.
What is Kids' Camp?
500
While sounding more like a law firm, Farrington, Freestone, and Gehrs are actually members of this NFED Governing body.
What is the Board?
500
All ectodermal dysplasias are heritable or this type of disorder.
What is Genetic?
500
Those who are allowed to raise funds for NFED.
Who is anyone?
500
This unlucky numbered step on the state capital is exactly 1 mile above sea level.
What is the 13th step?
500
Location where YOU would like next years conference to be held