Medical
PWS affects this many live births annually.
What is 1 in 15,000 - 20,000?
In 2001, this program was created to support families who have just received the PWS diagnosis.
What is Parent Mentor Program?
National PWS awareness month takes place during this month.
What is May?
In 2000, the FDA approved the use of this treatment for PWS.
What is growth hormone?
A genetic disorder that is caused by an abnormality on this chromosome.
What is Chromosome 15
When attending doctor's appointments or visiting the emergency department, you should bring this document with you.
What is Medical Alerts Booklet?
PWSA's Family Support team can be reached 24 hours per day, 7 days per week by calling this phone number.
What is 941.312.0400?
Lighting up your home with PWSA colors, contacting your elected officials and speaking about PWS at your local library are examples of this.
What is raising awareness?
This group of researchers and health care providers guide PWSA's reserach efforts.
What is the clincial scientific advisory board?
This genetic test can be used to detect chromosome deletions and many cases of UPD.
What is chromosome microarray?
Individuals with PWS have a lower metabolic rate than their same aged peers. For this reason when starting a new medication, PWSA recommends this.
What is start low and go slow?
What does Family Support do?
Out of 50 states, this many have PWS listed as a qualifying diagnosis for waiver eligibility.
What is 15?
This organization stores postmortem tissue donations to be used for ongoing PWS research efforts.
What is Autism Brain Net?
There are seven of these phases with phase 0 beginning in utero.
What is nutrional phases?
This document can be used to guide physicians when patients are reporting abdominal pain / distension.
What is GI algorithm?
In 1979, this event, the first of it's kind, was held in Minneapolis, Minnesota.
In 2023, this state successfully advocated for PWS to be added as a qualifying diagnosis for state funded services.
What is Arizona?
In 1989, this was identified and accounts for most of the non-deletion PWS cases.
What is Maternal Uniparental Disomy?
PWS was discovered in 1956 based on the clinical features of nine children by these three doctors.
Who are Drs. Prader, Willi and Labhart?
This website is used by physicians to learn critical information about PWS when treating patients.
What is Up to Date?
This person was PWSA's first Crisis Intervention and Family Support Counselor.
Who is David Wyatt?
During PWSA's first D.C. Fly-In, advocates attended this many meetings with their elected officials.
What is 70?
PWSA began funding research grants in this year.
What is 1983?
In this year was deletion in the long arm of chromosome 15 identified as the cause of many cases of PWS.
What is 1981?