RDC Basics
What does RDC stand for?
What is Rare Disease Club
What is Rare Disease Day?
What is an awareness event to improve treatment access for rare disease patients
What type of disorder is Huntington’s disease?
What is a genetic neurodegenerative disorder
What does Cure Rare Disease focus on?
What is developing and funding genetic medicines for rare and ultra-rare diseases
Name one way RDC raises money
Examples: fundraising booths, jewelry sales, pop-up markets, restaurant fundraisers
What type of organization is RDC?
What is a 501(c)(3) nonprofit
When does Rare Disease Day occur?
What is the 29th of February
What chromosome is affected in Huntington’s disease?
What is chromosome 4
What is Kaleidoscope’s mission?
What is supporting people in East Contra Costa County facing cancer or life-threatening challenges
Where does RDC guest speak?
What is local schools like Hart and PMS
Who founded RDC?
Who are Parnika Khatri and Samhita Ramesh
Why do people wear zebra stripes?
What is to remind doctors to consider rare diseases, not just common ones (“zebras, not horses”)
What is Phantom Earthquake Syndrome?
What is a condition where people feel movement or dizziness without an actual earthquake
What does Continuum Care Hospice provide?
What is care and dignity for terminally ill patients and their families
Name one volunteer activity RDC offers
Examples: card-making, bracelet workshops, care packages
How many members does RDC have?
What is 80+ members
What is the main goal of rare disease advocacy?
What is to raise awareness and drive research, funding, and policy change
Name two symptoms of Huntington’s disease
what is jerky movements, mood swings, depression, memory loss, poor coordination(any two said works)
Name one support group for rare diseases
Examples: Family House, Inc. or Crohn’s and Colitis Foundation
How much has RDC raised recently?
What is about $850 in one month
What is Mission 7K?
What is a fundraising initiative to help a family affected by rare diseases
What event can students attend in 2026 to learn about rare diseases?
What is The Rare Disease Symposium 2026 at UCSF on February 13th
What is the main cause of Phantom Earthquake Syndrome?
What is stress and the brain’s sensitivity after traumatic events
What is one major accomplishment of Cure Rare Disease?
Examples: $5.8 million invested in R&D OR 200,000+ potential lives impacted
Name three ways YOU can support rare disease causes
Examples: donate, volunteer, fundraise, attend awareness events