Facts about sickle cell disease
This type is usually the most severe type of sickle cell.
What is HbSS?
One of these is the common immediate treatment for pain crisis
What is pain medication?
What is IV fluids?
What is transfusion?
Sickle cell patients often experience severe pain, which is commonly referred to as a pain ____.
What is crisis/crises?
This national organization, founded in 1971, advocates for people with sickle cell disease
What is Sickle Cell Disease Association of America, Inc.?
The NCAA requires college student-athletes to be tested for this.
What is sickle cell trait?
Sickle cell is a disease that affects these types of blood cells.
What are red blood cells?
This is a currently available cure for sickle cell disease, although not everyone can take advantage of it.This type of transplant can cure certain cases of sickle cell.
What is a bone marrow or stem cell transplant?
Newborns diagnosed with sickle cell disease are given this medication to take regularly, usually for five years, to fight infection.
What is penicillin?
This organization, founded 25 years ago, specifically supports families affected by sickle cell disease in the DC metropolitan area.
What is the Sickle Cell Association of the National Capital Area, Inc.?
Sickle cell disease occurs in one in _______ African-American births.
What is 300 - 400?
Sickle cells have a shorter life span, which leads to a shortage of red blood cells, called this medical term.
What is anemia?
This drug increases the production of hemoglobin F (fetal hemoglobin)
What is hydroxyurea?
People with SCD who receive frequent transfusions are at risk of developing this complication.
What is iron overload?
This agreement, between the parent and the school, allows for "modifications" for the student with sickle cell disease, to be able to accommodate their condition during school hours, such as being able to have water in the classroom, have an extra set of textbooks at home, and be provided with make up work as needed.
What is a 504 Plan?
This is the chance for sickle cell disease in the child of a couple, where one person has sickle cell disease and the other person has sickle cell trait.
What is 50% or 1 in 2?
This is a severe complication of sickle cell disease, which occurs when sickling occurs in the lungs.
What is a acute chest syndrome?
This type of therapy may be an eventual cure for sickle cell disease for most people.
What is gene therapy?
This test is usually done on children between ages 3 - 12 years, to see if they are at a higher risk for stroke.
What is transcranial doppler (TCD) ultrasound screening or ultrasound of the brain?
This plan can be useful for a child with SCD who is also has another disability (learning, physical, mental, etc.). It can require a teaching aide in the classroom, smaller class size, specially designed assignments, or speech therapy.
What is an Individualized Education Plan (IEP)?
Approximately this many people have sickle cell disease in the United States.
What is 100,000?
A major health problem can occur when this organ traps the majority of blood in a person's body (due to sickling), acting like a sponge.
What is the spleen?
This drug was approved in 2017 by the FDA for sickle cell disease treatment, and decreases the rate of sickling.
What is Endari or L-glutamine?
This condition is more common in people with HbSC and can affect vision.
What is retinopathy or problems with the retina?
The Americans with Disabilities Act can protect people with sickle cell disease from this at their jobs.
What is work/job discrimination?
People with sickle cell trait are protected from what type of disease, which is usually fatal?
What is malaria?