Kidneys
These act like a strainer, keeping in the good products and draining the dirty water
Glomeruli
Visit data is entered into this system found on the RDCRN website
REDCap
On a typical week, what days do you NOT ship biospecimens
Thursday and Friday
This must be added to the contact info CRF before a PRO survey can be sent to the participant
their email
Before uploading any pathology or EM images to REDCap, they must be this, which removes information like patient name and hospital
de-identified
When eGFR <15 ml/min persistently, the person has reached this
Kidney failure/end stage kidney disease
This visit is required to be done in-person
Enrollment
This should be included in all shipments, which documents what samples are included in the shipment
Manifest
To add a new participant click on this green button in the add/edit records page
add new record
Reach out to this person if you have study questions
Your Lead PCC
This disease causes 90% of NS in children <10
Minimal Change Disease
The PRO surveys are collected at these visits
All Visits
On the label, there is a space to fill in the PID and CD, which stands for this
Patient ID and Collection date
For every missed visit, open this form and click “save and exit form” for data to show at the next occurred visit
Missed Visit Pull Thru
Before CureGN 2 participants can continue into CureGN 3, they must review and sign this document
Consent
Proteinuria is a marker for loss of this over time
GFR
This device can be mailed to participants for self collection of blood
Tap Micro Device
Along with the manifest, this should also be included in your shipper to more clearly specify the study, site, and your contact information
Cover Sheet
If you open the consent form and don’t see any questions, REDCap thinks your patient is this
Ineligible
CureGN has 4 PCCs, Columbia, Penn, UNC, and this
MWPNC
5-10% of patients with this kidney disease experience clots
MN
These blood samples are only collected once, preferable at the enrollment visit
RNA/DNA
When creating a shipping manifest for your blood and urine samples, typing this in the search bar of the biospecimen tracking module will get rid of biopsy slides and DNA/RNA samples
NIDDK
When you open the Print Visit CRF form for a visit, make sure you click this before printing or none of the pull through data will appear
Save
This council of patients provides feedback and support on such things as R&R strategies, patient facing materials, and social/mobile technology development
CureGN patient advisory council