FOP
Symptoms
Therapy
Did you know
100

Disease where connective tissue turns to bones.

What is Fibrodysplasia Ossificans Progressiva (FOP)?

100
Bones and Joints
What hardenings and stiffens in FOB patients?
100
No cure or definitive treatment
Is this a lifelong condition?
100
90%
How many patients are misdiagnosed or mismanaged with FOP?
200

Muscle, tendons, and ligaments

Where does bone formation occur in FOP?

200

What is the malformation of the hallux (big toe) and first sign of FOP?

200
Flexible cutlery, shoe funnels, magnetic buttons
What is improving quality of life?
200
Wheelchair bound
What occurs by 20's?
300

Genetic condition due to a mutation in the gene for bones.

Why does FOP occur?

300
Decreased mobility or Permanent immobility
What level of mobility do you have with FOP?
300
Avoiding injuries, infections or surgery
How to prevent flare-ups?
300
900
How many cases worldwide?
400
Onset before age of 10​​

When does it happen?

400
Hearing impairment

Does hearing loss occur with FOB?

400
Steroids
How to treat certain flare-ups?
400
Thoracic Insufficiency Syndrome

What is common reason for deaths in FOP individuals?

500

Only known medical disease in human body where tissue of one organ system changes into another.

What is unique about this disease?

500
Difficulty hearing and speaking
What happens when bone growth occurs in the jaw and neck?
500

40 years old

What is median age of death?