Communication, Preparation, Distraction and Procedural Support
conveying information to the child in a developmentally appropriate manner
irreversibility- dying can not be reversed
non-functionality- organs and the body stop working and doing what they are supposed to do or used to do
universality- everyone dies
Who makes up the YAC
UI Children's Hospital patients 12 years and older
What is an example of a private practice that utilizes child life service
Wonders & Worries
utilizes CLS to provide individual and group support to children and families coping with chronic or life-threatening illnesses
Is it appropriate to say something to a family that needs to be said behind closed doors?
No
How far in advance should you prepare a 10 year old child for a procedure or surgery
At least 1 week in advance
Describe how siblings grieve and how to help them through it
guilt, shame, attention seeking, sleeping difficulties, change in social behaviors etc.
interventions: help find resources and support groups, include them in the process, explain in developmentally appropriate ways, educate parents on what is normal for a child their age going through this etc.
True or false: Need for positivity is one of the 3 basic needs of family centered care?
False
What are 2 fundamental chid life skills
Child development- strong knowledge base on development
Theories of play- therapeutic value of play and expressive activities to aid in coping
Coping theory- assessment of children's play and activities to provide insight to their coping
Providing developmental appropriate education- provide developmentally appropriate education regarding different situations and help develop coping mechanisms
Provide parent or professional education regarding child development and their responses to crisis
Facilitating support groups
Grief and loss- understanding the developmental impact of trauma
Knowledge of hospital experiences- helping a child to understand their current situation
Ex. Medical play and procedural support
What is the difference between empathy and sympathy
empathy: feeling with
-when you "feel with" the person that is in distress and imagine how they experience their world
sympathy: feeling for
-feeling for the person in distress but remaining distant
Empathy and sympathy both promote helping
…balance is needed in your emotional involvement
Ideally- the professional is in a state of balance: able to become emotionally involved when needed, but able to pull back when necessary
-if you fall in- too emotionally involved (over-involved) it limits our helping
-unable to think objectively
-we don’t have help
What are 2 of the 5 qualities of a high quality distraction coach
*1-Sensitivity to developmental level,
*2-Sensitivity to child’s cues,
*3-Focus on distraction,
*4-Engage child (capture attention),
*5-Encourage child’s use of distraction)
List 3 examples of keepsake items or memory making:
lock of hair
ink prints
hand molds
photographs
artwork
ID bands
fingerprint jewlery
What are the 4 guiding principles of patient and family centered care
D I G N I T Y A N D R E S P E C T
Health care practitioners listen to and honor patient and family perspectives
and choices. Patient and family knowledge, values, beliefs and cultural
backgrounds are incorporated into the planning and delivery of care.
I N F O R M AT I O N S H A R I N G
Health care practitioners communicate and share complete and unbiased
information with patients and families in ways that are affirming and useful.
Patients and families receive timely, complete and accurate information in
order to effectively participate in care and decision-making.
PA R T I C I PAT I O N
Patients and families are encouraged and supported in participating in care
and decision-making at the level they choose.
CO L L A B O R AT I O N
Patients, families, health care practitioners, and hospital leaders collaborate
in policy and program development, implementation and evaluation; in
health care facility design; and in professional education, as well as in the
Who does the RMH serve?
serves families of children (birth-18) receiving critical medical care (in iowa city)
Give an example of a time that boundaries were crossed between medical caregiver and the patients in the Lion in the House
Nurse and her care with one of the patients
What is one thing that you can do to distract a child during procedure
Many options
-bubbles
-reading a book
-ispy book
-breathing techniques
List the 4 phases of parent grief
shock
actuality
despair
searching for meaning
What is information sharing
communicating and share COMPLETE and UNBIASED information with patients and familes in ways that are affirming and useful - we ensure that patients and families receive timely, complete and accurate information in order to effectively participate in care and decision making
List 3 psychosocial issues from the Lion in the House
death, dying, bereavement
sibling issues
medical play/procedural support
boundaries/ethics
What is burnout?
exhaustion of phyiscal or emotional strength or motivation usually as a result of prolongd stress of frustration
-feelings of failure -feelings of being worn out -becoming exhausted
How would you communicate with a five-year old prior to procedure?
using play
using concrete meanings and explanations
Exploration of facilities and playroom
Explanation- medical play
Appropriate choices- don not offer choices that the child does not have
The child’s role- his or her jobs related to the procedure
Coping strategies- give the child cues to know when one step is finished
Positive ending- stickers or other rewards
What interventions could you do with an adolescent who is dying?
be honest and tell them the everything that is going on
enable expression of needs, wishes, etc.
support how or where he/she wants to die (support end of life decisions)
What are 3 common feelings siblings experience
Confusion: Why is sibling sick? Medical Terminology.
Worry and Fear: Worrying about HOW sick the sibling is, or if they may die. Worrying if they will get sick or “catch it” too. Fear of the hospital
Sadness and Loss: Sad because their sibling is sick. That there parents are not at home with them, or they may miss their parents, siblings, and their old “normal” life
Guilty: That they did something to cause this sickness or disability. Or guilty because they are not sick themselves.
Jealousy and Left Out Feelings: The attention and gifts the sick child may receive, or attention from the parents.
Anger: Being “left” at home or with other caregivers. Feeling Abandoned. Maybe getting additional responsibilities or chores
Embarrassment: Being embarrassed of their sibling, ex. Loss of hair, wheelchair, different special needs.
Give an example of when a CLS could have been used during the movie, Lion in the House and what they could have done to help
....
What are 4 ways to help avoid burnout?
learn to say no
go home without taking work with you
write in a journal
attend funerals or memorials
talk to co-workers
making time for yourself
professional help
using your vacation time