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ALS Facts
100
The program named after Robert Wright, as a result of annual funding provided by a golf tournament held in his memory.
What is the Robert Wright Memorial Equipment Loan Program. In 2013, 153 equipment requests were fulfilled.
100
The month dedicated to ALS Awareness
What is May The ALS Symposium, hosted by the Chapter in cooperation with the Clinic, is scheduled for Friday, May 30. Mark your calendars!
100
The number of counties contained in our service territory.
What is 48
100
The location of the four walks hosted by the Upstate New York Chapter each year.
What is Buffalo (Aug. 2nd), Binghamton (Aug 9th), Syracuse (Sept. 13) and Rochester (Sept. 20)
100
The rate at which ALS affects the military as compared to the general public
What is 2 to 1
200
The amount of money awarded in FYE 2014 under the Respite Care Program.
What is $30,000. In 2013, over 40 caregivers were able to access this fund.
200
The New York Yankee pitcher who partnered with the Chapter for ALS Awareness at two minor league baseball games in 2013.
Who is Tommy John. His fried, Catfish Hunter, died from ALS. Tommy John is a national spokesperson for the National ALS Registry. The registry was designed with the CDC to collect data from living pALS for the purpose of research.
200
The name of the standard for facilitating discussions and group-decision making for the Board.
What is Robert's Rules of Order
200
The number of golf tournaments that have Chapter involvement and support each year.
What is 3. Robert Wright Golf Tournament at Pompey Pines - July 28, 2014 - Raised $33,000 in 2013 Brendan Donohue Golf Tournament at Erie Links - Raised $7,000 in 2013 ALS Golf Tournament in Brushton, NY (St. Lawrence County) - Raised $8,000 in 2013
200
The only drug currently approved by the FDA for treatment of ALS
What is Riluzol (Rilutek)
300
The number of currently operating support groups.
What is 4. Syracuse and Binghamton with Rabecca Coulter as the Facilitator. Rochester and Buffalo Facilitator is to be determined. Watertown is currently suspended until Spring.
300
The number of legislators visited by the Chapter representatives on Advocacy Day in May
What is 11, including Senators Schumer and Gillibrand
300
The ALS Association's Mission Statement
What is "Leading the fight to treat and cure ALS through global research and nationwide advocacy while also empowering people with Lou Gehrig's Disease and their families to live fuller lives by providing them with compassionate care and support."
300
The NYS Legislature just passed the Nonprofit Revitalization Act in December 2013. The date in which it goes into effect.
What is July 1, 2014
300
The number of people who are diagnosed with ALS every day in the United States
What is 15
400
The name of the doctor who serves as the director of the ALS Certified Center of Excellence at Upstate Hospital in Syracuse, NY.
Who is Dr. Jeremy Shefner. In addition to his role as Director of the Clinic, he is the Primary Investigator of the clinical trials and Co-Coordinator of NEALS - a nationwide coalition of medical centers with research centers.
400
The amount of money the House Appropriations Committee approved in legislation to provide continued funding for the ALS Research Program (ALSRP) at the Department of Defense.
What is $7.5 million. If enacted, it will bring the total funding for the program to nearly $50 million.
400
The number of telephone calls per month the Chapter will ask you to make to thank supporters for their gift of time or money.
What is 4-5. And we will provide a script!
400
The two online campaigns available for fundraising individuals looking to do something outside of Walk.
What is $1 Dollar Difference and Community of Hope. $1 Dollar Difference caters to those who host a 3rd party event. Participants can use this site to solicit online donations. Community of hope is used for hosting events such as a birthday party, anniversary party, memorial service, or other annually recurring event. This site provides an opportunity to tell your story for the purpose of hosting an annual event.
400
What ALS stands for
What is Amyotrophic Lateral Schlerosis
500
The name of the person whom the Loan Library is named for.
Who is James Howard. His family donated to the Chapter to provide educational books and DVDs for the general public. His daughter-in-law, Susan Howard, is employed at Lewis Tree Service in Rochester. The company has donated $3500 to the Chapter in the past two years.
500
The number of research grants awarded by The ALS Association in 2013.
What is 37. Grants were awarded to researchers in seven countries throughout the world. Currently there are more than 3 dozen clinical trials.
500
Give an example of a conflict of interest that you as a board member would be required to disclose.
What is a) the sale, purchase, lease or rental of any property or other asset b) employment, or rendition of services, personal or otherwise c) the award of any grant, contract, or subcontract d) the investment or deposit of any funds of the Chapter e) ownership or partial ownership in a company or organization that stands to benefit from your affiliation with the Chapter
500
The amount of money the Walks in Upstate New York grossed in 2013
What is $447,878.42. Buffalo (including Dunkirk) - $155,576.24 Binghamton - $49,684.00 Syracuse - $172,510.68 Rochester - $70,107.50
500
The year in which Congress passed legislation benefiting the ALS community by eliminating the usual 24-month waiting period for SSDI recipients disabled by ALS.
What is 2001. In addition, Medicare entitlement begins the first month the recipient receives SSDI cash benefits - approximately 5 months after the patient is deemed disabled.