Notable Figures
This “neighbor” inspired legions of supporters
Marie Coyle
This artist wrote the song “Mama” in honor of her mother, who was diagnosed with scleroderma the year she passed.
This artist wrote the song “Mama” in honor of her mother, who was diagnosed with scleroderma the year she passed.
Google and the Foundation were both founded in this year.
1998
What is the more common form of scleroderma among children?
Localized
What does SSLED stand for?
Scleroderma Support Group Leader Education Program
This fashionista wore many hats and “retired” in 2021
Robert Riggs
This actor was an outspoken advocate for scleroderma research after losing his sister to the disease at 47.
Bob Saget
This event series celebrated 20 years this year.
Stepping Out to Cure Scleroderma
When is World Scleroderma Day?
June 29th
Where will the 2024 Annual Scleroderma Conference be held?
Seattle, WA
This power couple won the Lifetime Achievement Award in 2022.
Ronni & Cos Mallozi
This royal welcomed attendees to our 2021 virtual conference.
Queen Latifah
Since its inception, NSF has committed how much money for scleroderma research
$30M
Advance medical research, promote disease awareness and provide education/support are what
NSF's Mission/3 Main Pillars
Virtual, In-Person and/or Hybrid
How support groups meetings are held
This scleroderma celebrity gave the closing keynote at the 2023 Conference.
Who is Dr. Carol Feghali-Bostwick?
PAB
Patient Advisory Board
Support Groups were first formed in what year?
1998
A few volunteers have won two awards in their tenure. Who has won THREE?
Who are Evamarie Cole and/or Dr. Virginia Steen?
This 1996 film featured the story of Bob Saget’s sister's journey with scleroderma.
“For Hope”
MSAB
Medical Advisory Board