NORD Jeopardy!

Rare Diseases

100

What is a Rare Disease?

What is a disorder that only affects a small number of Americans nationwide?

200

What is an orphan disease?

What is a type of rare disease that has little or no funding/research for treatments, without financial incentives from governments or other agencies?

300

What percent of rare diseases are genetic?

What is 80%?

400

How many Americans does a rare disease affect?

What is 1/200,000?

500

What is one of the most widely known rare diseases?

What is:

• Cystic Fibrosis
• ALS (Lou Gehrig's Disease) 
• Huntington's Disease 
• Ehlers-Danlos Syndrome (EDS)
• Duchenne Muscular Dystrophy (DMD)

Benefits

100

What is NORD Students for Rare?

What is a patient advocacy organization dedicated to promoting the health and well-being of individuals with rare diseases?

200

Who does NORD students for Rare represent?

What is college and high school students who unite to spread awareness, educate peers, and advocate for people affected by rare diseases?

300

What is one benefit of NORD Students for Rare?

What is 

• students get early consideration and priority status for scholarships
• Networking opportunities with students, organization members, and chapters nationwide
• Access to special webinars and meetings for Students for Rare to learn more about rare diseases
  

400

Why should you be a part of NORD?

What is

• to help advocate for more research and awareness towards rare diseases
• for priority access to scholarships and events

500

How can you get involved with NORD?

What is 

• participating in our fundraisers
• come to our awareness events
• keep attending our meetings
• check out Lily's rare disease blog

What and Why

100

What does NORD stand for?

What is the National Organization of Rare Disorders?

200

What is our best fundraiser?

What is selling Krispy Kreme?

300

What is NORD?

What is a U.S nonprofit health agency and advocacy group representing patients and families affected by rare diseases?

400

What is the mascot of NORD?

What is a zebra?

500

What is NORD's mission statement?

What is improving the health and well-being of people with rare diseases?

Fun Facts

100

Who has been a member of NORD for three years and held and executive board position before?

Who is Nirja?

200

When is Rare Disease Day?

What is February 29?

300

What college does our previous president (Lily Stuart) now attend?

What is Princeton?

400

How many years have all of us been on NORD combined?

What is 16?

500

When was the OLHS NORD Chapter founded?

What is 2024?