Sickle Cell 101
What is sickle cell disease?
A blood disorder that affects red blood cells, making them shaped like a sickle.
This sudden and severe episode occurs when sickled red blood cells block blood flow, causing intense discomfort in the bones, joints, and other parts of the body.
what is a Pain Crisis
This common procedure provides sickle cell patients with healthy red blood cells to improve oxygen delivery and reduce complications.
What is a simple blood transfusion
This over-the-counter pain reliever is commonly used for mild to moderate pain in sickle cell patients
What is ibuprofen
This person is in charge of your overall medical care and is the one you see for check-ups and treatments
Who is my doctor/provider
what is Sickle or crescent-shaped
A buildup of bilirubin from the breakdown of sickled red blood cells can cause the whites of the eyes to turn yellow. What is this condition called
what is jaundice
This type of transfusion removes sickled blood cells while replacing them with healthy donor cells, helping to prevent strokes and severe complications
what is exchange blood transfusion
This prescription pain medication is used for severe pain crises but must be carefully managed to avoid dependence and side effects.
What is oxycodone
This team provides psychosocial support, education and preparation for procedures and treatment, and empowers kids to advocate for themselves in their care.
What is the child life specialist team.
Sickle Cell Trait
Sickle cell patients are at higher risk for infections because this organ, which helps fight bacteria, can become damaged or stop working properly.
What is The spleen
This cutting-edge treatment works by modifying a patient's own stem cells to produce healthy hemoglobin, reducing or eliminating sickle cell symptoms
what is gene therapy
This daily medication increases fetal hemoglobin to reduce the number of sickled cells and prevent pain crises
What is hydroxyurea
This area of the pediatric hospital is where you receive your blood transfusions.
What is the PACT
How is sickle cell disease inherited?
Both parents must carry the sickle cell gene.
This complication of sickle cell disease causes chest pain, fever, cough, and difficulty breathing due to blocked blood flow in the lungs
what is acute chest syndrome
This treatment involves replacing a sickle cell patient’s bone marrow with healthy stem cells from a donor, offering a potential cure
what is bone marrow transplant
This vitamin is recommended for sickle cell patients to help the body produce healthy red blood cells.
What is folic acid
These individuals check your weight and height before you meet with the provide
What are the PCTs (Patient Care Technicians)
This protein in red blood cells carries oxygen.
what is Hemoglobin
This painful and prolonged medical condition occurs when sickled blood cells block blood flow, preventing proper circulation in the male body.
what is priapism
what is preventative strategies for pain crises or VOE?
Sickle cell patients, especially young children, often take this antibiotic daily to prevent dangerous bacterial infections.
What is penicillin
These individuals help you obtain resources in the community such as transportation, 504 forms for school, and Social Security information.
What is social work