Palliative Care
Barriers to Care
Services for Children
Services for Families
End-of-Life Care
200

Palliative care is only for patients who are actively dying: True or False

What is False? Palliative care is for anyone with a life-limiting or life-threatening condition

200

As with many services, palliative care lacks this resource

What is money?

200

This is the most common symptom reported by children with life-limiting and life-threatening illnesses

What is pain?

200

Pediatric palliative care teams provide services for the patient, their parents, and these members of the family

Who are siblings?

200

Children are often the first to know and initiate discussions about this

What is dying?

400

The primary goal of palliative care is to improve this three-word phrase.

What is Quality of Life?

400

Possibly the most pervasive barrier to palliative care is this

What is stigma/misinformation?

400

A pediatric palliative care team provides this type of care, which includes physical, psychological, emotional, and social wellbeing. 

What is holistic?

400

Pediatric palliative care often recommends this service for the entire family when a child has a life-threatening illness

What is family counseling?

400

This type of care follows after a child has died and is provided by a palliative care service

What is bereavement care?

600

Palliative care is a type of specialty care that is standardized for all patients: True or False

What is False? Palliative care is not standardized, but individualized to each patient's and family's specific needs

600

Nurses identify this as the most impactful barrier to providing palliative care

What is education?

600

Pediatric palliative care enhances this between children and their families

What is communication?

600

Pediatric palliative care can help parents with this process, as it relates to their child's care and practical issues

What is decision-making?

600

Pediatric palliative care services can often help families with planning and financing for this

What is funeral proceedings

800

Palliative care allows this person to be involved in communication surrounding diagnosis, prognosis, and treatment

Who is the child?

800

Families of children with life-threatening conditions often state discomfort with conversations about this as a reason for avoiding palliative care

What is death and dying?

800

Pediatric palliative care can be provided in the hospital, at a hospice facility, or here, where a child is often most comfortable

What is home?

800

Parents who lose a child often report this as the most difficult part to cope with

What is the loss of potential/what could have been?

800

This is the most helpful resource that a pediatric palliative care team can provide to grieving families, and it is only currently offered by St. Jude

Who are bereaved parent mentors?

1000

This is the number of developed, fully functioning pediatric palliative care services in the United States.

What is 2? St. Jude (The QoLA Team) and CHOP

1000

Research shows that dissemination about this is a major facilitator for implementing pediatric palliative care

What is positive experiences?

1000

Pediatric palliative care helps children learn this process, which makes living with a chronic illness a little easier

What is coping?

1000

Pediatric palliative care often coordinates with child life services to create this, something left behind for the families when a child dies

What is a legacy?

1000

St. Jude hosts this event each year to honor the children who were lost in the previous year, and allow their families and care teams to reunite

What is Day of Remembrance?