Considerations
Overnight care, care facilities, privately hired workers
(Robinson-Lane, 2017)
What are different types of respite?
A time and attention demanding or ‘monopolizing’ task for many.
(Doig, 2009, pg. 236)
What is caring for a child with special needs?
(Information Resource: Very Well Family https://www.verywellfamily.com/special-need-caregiver-tips-and-strategies-4157328 )
This is when a judge appoints a person to make some or all decisions for a minor or another adult.
(Millar, 2013 p 1 para 1)
What is guardianship?
(Information Resource: Procedure for Appointing a Guardian for an Adult https://www.utcourts.gov/howto/family/gc/guardianship/)
This provides a caretaker and/or families, a break caring for an individual with a disability or other special needs such as; long term or terminal illnesses. The purpose is to prevent the possibility of stress induced neglect and/or abuse.
(Whitmore, 2016, p. 631)
What is Respite care?
This resource will Assists those who need help and are living in Utah with such care.
Foster families, adopted families, and kinship placements use this to maximize opportunities for taking care of their needs.
Sometimes caregivers can get this to cover the respite costs for their loved ones.
(Robinson-Lane, 2017)
Information Reference Link https://www-sciencedirect-com.dist.lib.usu.edu/science/article/pii/S000399931730388X
What is insurance?
Often a lengthy and time-consuming endeavor, leading to feelings of apprehension and confusion for many parents.
(Doig, 2009, pg. 237)
What is Obtaining information and support?
Just because an individual has this does not mean a parent or guardian will retain or receive guardianship at the "age of majority".
(Millar, 2013 p 1 para 2)
What is a disability?
This is defined as how an individual's state of well being is, when their daily life becomes unpredictable, out of control of to much to handle.
(Whitmore, 2016, p. 631)
What is stress?
This type of respite care is provided by a facility with trained professionals such as in-home caretaker, respite care agency, daycare or institution.
(Madsen, 2016, p 528 para 2)
These are questions that should be asked when finding a respite care provider. These questions might be is the facility clean, what costs will the family be responsible for, or does the person in my home make me feel safe?
(Robinson-Lane, 2017)
What are important considerations?
Emerged as a bidirectional process, one in which providers had certain ‘criteria’ that were required of their potential clients, but also one in which the clients had certain expectations and needs that the providers had to meet.
(Doig, 2009, pg. 237)
What is meeting the requirements?
Guardianship can be declared as plenary (Total) or partial (limited). These type of guardians aim to foster autonomy, "maintaining opportunities for the ward to make independent choices"
(Millar, 2013 p 3, para 2)
What is Partial or limited Guardianship?
Allows the care caregiver to have improved mental health, and piece of mind. In addition it will allow the caregiver to improve their family function and provide concrete support to all.
(Mannan, et al., 2011, p. 40)
What are the Benefits of Respite care?
Parents of a child with this disability have found to have positive experiences and less depression, stress, caregiver burden compared to mothers of children with other disabilities.
(Norton, 2016, p 3700 para 4)
This is a consideration when you have guardianship. This includes when you talk to a loved one with a disability to figure out how they feel about a situation.
(Dinerstein, 2017)
What is listening to them?
This was problematic for parents with limited mobility or those who were not in close proximity to the respite service they were using.
(Doig, 2009, pg. 237)
What is transportation and location?
Informal support from family and friends, (Supported decision-making) trust funds, specialized bank accounts, powers of attorney, representatives payees, and case management services are all recognized as __________ to gaining guardianship.
(MacLeod p. 2 Para 3)
What are alternatives?
It may be difficult to get the appropriate financial support or reimbursement. In addition some family's require the services to meet specific times, and length. Many small towns may have difficultly locating services and most importantly some facilities may not have properly trained staff, that are cable of caring for the individual with disability.
(Whitmore, 2016, p. 650)
What are barriers to Respite Care?
Single mothers with a child with Autism found if they use respite for 1 hour a day, it greatly decreased _________.
This is sharing with your loved one language or situations that they are exposed to.
(Dinerstein, 2017)
What is explaining?
Was constructed as a challenging process, parents had used or were currently using a variety of formal and informal supports for respite care.
(Doig, 2009, pg. 240)
What is finding and obtaining respite care?
When a family member or care giver of a disability surrenders the caring role for their loved one this is called...
(Nankervis, et al 2011 p 3, para 1
What is Relinquishment?
This may increase, when the care givers develops guilt after placing an individual with disabilities in some one else's care. It may additionally increase if they feel embarrassed knowing that they are unable to care for this individual.
(Whitmore, 2016, p. 631)
What is an increase the stress level of using Respite care?
When using respite care on a regular basis it reduces ________ and increases_______.
What is reducing daily stress level and increasing marital quality?
https://doi-org.dist.lib.usu.edu/10.1007/s10803-016-2902-6