Importance of Self-Advocacy
What is self-advocacy?
The ability to speak up for oneself and make informed decisions about one's care.
What is something you can do before a doctor's appointment to help advocate for yourself?
Write down questions or concerns they want to discuss with their provider.
After a brain injury, what is a common cognitive challenge that might make self-advocacy difficult?
Memory loss or difficulty concentrating.
You have the right to participate in decisions about your care. What is this right called?
Informed consent.
True or False: Self-advocacy only involves speaking up during medical appointments.
False.
(Self-advocacy also involves setting personal goals, asking for help, and being informed.)
What should you do if you don’t understand something the doctor says?
Ask the doctor to explain it in simpler terms.
What can a person do if they feel overwhelmed by their recovery process?
Ask for support from family, friends, or mental health professionals.
This document allows you to name someone to make healthcare decisions for you if you are unable to.
Healthcare proxy (medical power of attorney).
Why is self-advocacy important for someone recovering from a brain injury?
It helps ensure that the person's needs, preferences, and rights are considered in their care.
True or False: A patient should never question their doctor’s advice or recommendations.
False.
(It is important to ask questions and seek second opinions if necessary.)
If a person is experiencing difficulty with speech or communication after a brain injury, what should they do to advocate for themselves?
Request speech therapy or alternative communication methods.
If you feel you aren't getting the care you need, you can ask for this from another healthcare provider.
Second opinion.
Name one way you could advocate for your needs during a hospital stay.
Asking about treatment options, discussing concerns with the care team, or requesting modifications to therapy sessions.
What is a medical power of attorney, and how does it relate to patient self-advocacy?
A legal document allowing someone else to make healthcare decisions on the patient’s behalf if they are unable to do so themselves.
Why might someone with a brain injury feel reluctant to speak up about their needs?
Fear of being a burden, embarrassment, or uncertainty about their rights.
This law protects patient privacy and ensures access to your own medical records.
HIPAA (Health Insurance Portability & Accountability Act).
What role do family members play in supporting a patient’s self-advocacy?
Helping the patient communicate with healthcare providers, offering emotional support, and ensuring that the patient's wishes are respected.
Why is it helpful to bring a family member or friend to medical appointments for self-advocacy?
They can help take notes, provide emotional support, and ensure the patient’s concerns are addressed.
What is one way to overcome communication barriers during recovery from a brain injury?
Using tools like speech therapy, written communication, or assistive technology.
You can legally do this even if healthcare providers recommend it.
Refuse treatment.