Cystinosis 101
What organ do people with cystinosis often need to monitor closely?
What is the Kidney?
What’s one thing you should never forget when packing for a trip?
What are your medications?
This is a fancy word for a treatment that replaces kidney function.
What is dialysis?
What Great Lake is closest to Grand Rapids?
What is Lake Michigan?
What kind of doctor specializes in treating kidney issues?
What is a nephrologist?
Name one thing people do to stay entertained during long car rides.
What is listen to music / play games / watch movies? (we will accept multiple answers)
“Rare disease” means it affects fewer than how many people in the U.S.?
What is 200,000?
Name a food Michigan is famous for.
What is cherries / pasties / apples / fudge? (Accept multiple)
Cystinosis is caused by a buildup of what substance in the cells?
What is cystine?
True or False – Most people with cystinosis have visited another state for care.
What is true?
What does “depleting agent” mean when talking about medication?
What is a medication that helps remove cystine from cells?
If you could have any superpower, what would it be?
Open-ended, judge based on creativity/fun