Recruitment
The two groups we recruit from
Former SEABIRD participants and clinic referrals
The main components of the initial visit
Consent, MoCA, blood draw, CDR
The proteins we look for in follow-up tests
tau and amyloid
The window for scheduling a participant's year 2 visit
+/- 6 weeks from first visit anniversary
What a Study Partner completes before the first visit
ADLs (if not done by pt), AD8, FAQ
How much blood we collect for former SEABIRD pts vs new clinic recruits
60mL vs 90mL
The diagnostic tests available through our study
Tau PET and an amyloid test (amyloid PET, blood test, or CSF)
The scheduling window years 3-5 are based off of
The initial visit (+/- 6 weeks)
What SUNBIRD stands for
Study to Understand Novel Biomarkers In Researching Dementia
What a GUID should start with
NIH
What DMT stands for
disease-modifying treatment
How much group 2 pts will receive for Y2 visit
$50
Who participants can call with concerns or complaints about the research study
HRPO
Gift Card lockbox code
321
What PET stands for
Positron Emission Tomography
What to do if group 2 pt has CDR>0 in Y2 visit
Schedule them for an in-person blood draw/MoCA within the window of +/- 6 weeks from initial visit
How long to schedule out if a pt has had a blood transfusion
3 months
Consent Tools score required to be able to consent
15-20 (13-14: decision based on professional judgement)
What are participants paid for each diagnostic test
tau PET: $200, amyloid test: $100
How to schedule an in-person Y2 visit
Email CAM Research Room Request (neuro-mcmillanllresearchroomrequest@email.wustl.edu) with name, date of reservation request, # of rooms needed, any special room requirements, and how long the reservation needs to be