Challenges Experienced by Parents
I don't understand what you're talking about. I'm not familiar with that acronym.
What is feeling overwhelmed by medical and professional jargon?
I like to feel empowered in my life.
What is empowers recipient of care?
I support the child 97 days per year and implement an IEP.
What is school?
In disability services, combining this approach with the structure of a multidisciplinary team (MDT) is considered best practice.
What is person-centered?
The CF took time to understand the parent's history with services, validating their fears and frustrations. This helped the CF to do what with the relationship with the parent?
What is rebuild trust?
It's hard for me to attend all the appointments and meetings while I work and care for my other children.
What is struggling to balance their child's needs with other family responsibilities?
I like to feel good about the things in my life.
What is improves quality of life
I have a very good insight into hygiene routines, meal times and sleep patterns.
What is the SGL provider?
Utilizing this approach in MDT practice ensures that the child's family remains part of the circle of support, even when the child lives in care.
What is person-centered?
We understand how stressful it can be when you don’t hear back quickly. Your commitment to your son’s well-being is really clear to us.
What is acknowledging a parent's anxiety?
I want to make sure the benefits of the treatment outweigh the risks. Virtual meetings make it especially difficult to express my concerns.
What is facing barriers in being heard or included in decision making.
I want to be independent.
What is supports independence?
I went to medical school.
Who is the child's physician?
Embedding this practice within MDTs facilitates better involvement of individuals and families in assessment, care planning, and decision-making processes.
What is person-centered?
Implement scheduled updates to provide predictability, reducing the need for reactive communication.
What is clear and consistent communication?
It's hard to think about the future. I can't think straight, I just need a break. I'm exhausted.
What is dealing with emotional stress related to their child's condition?
I want to choose my goals for the future.
What is honors choice?
I can wear many hats; the mediator, the negotiator, auditor and the supportive counsellor.
Who is the Case Facilitator?
__________________ in a person-centered way, trust is build and outcomes are significantly improved.
What happens when professionals work together with children and families?
Including the parent in decision-making, particularly when they feel conflicted: -present options in non-hierarchical way -Validate their concerns -Clarify roles within the MDT
What is collaborative decision-making?
I really did try. How can someone else care for my child? Did I make a mistake? I'm not sure who I am without them.
What is feelings of grief and loss that their child is no longer in their care.
I like to feel valued and respected.
What is promotes respect?
I love the child. I remember their first smile, their first steps and countless days spent in the NICU.
Who is the parent?
This is one thing that Person-centered practice promotes.
Accept any of the following: What is...
Respect for individuality, Active participation, Collaboration, Holistic approach, Dignity & respect.
Rather than saying “we don’t take calls on weekends,” reframe as: “We want to make sure someone who knows your son well responds to you. Let’s set up a plan for who will follow up and when.”
What is boundary setting?