Consent
What are the 3 key elements of consent?
voluntary
informed
ongoing
True or false: academic journal articles are the only appropriate forms of dissemination for research results?
false. Dissemination of results should be in a format suitable for the research particpants i.e. a video of a presentation, a webinar series, an article, etc.
Protection of the data and confidentiality is solely on the responsibility of the REB team True or False
False
Verbal consent is not enough to document consent. True or false?
False - some situations call for no written documentation to protect the participants. Each situation is different and consent needs to be obtained in the most appropriate way.
True or false: it is okay to exclude individuals or groups if it assumed that the results can be generalized to all groups.
FALSE. Generalizing findings can decrease the credibility of the findings, the value of applying it and the integrity of research.
Which article of the TCPS has the requirements that must be met in order for a secondary use research project to not need consent from its participants?
5.5
Is it ever ethical to not obtain consent before a participant engages in research?
Yes depending on the situation sometimes informing before the research will change the outcome( human behavior studies) but there should be minimal risk and they should be informed after.
True or false: it Is okay for researchers to throw away the results if they do not support or confirm their original hypothesis:
FALSE : the results must be disseminated and communicated regardless of the result outcomes.
Finish the statement: Research participants have a right to privacy with respect to the use of their personal information, including their...
human biological materials.
What is any one of the 3 core ethics principle?
Core ethical principles of Respect for persons requires autonomy of participants.
Seek consent of individuals able to provide it
APPROPRIATELY asking the will and best interest of those who cannot make the decision independently.
It is okay to exclude certain individuals or groups in your research study if they_____
a) they aren’t vibing with you during the interview process
b) they have different cultural practices and/or language from those of the research team.
c) they are unlikely to provide information of relevance to the research question or they are unlikely to benefit from the results.
c
What 2 qualifications does secondary use research need to meet in order to avoid gaining consent from participants?
Must meet article 5.5, and be REB approved