General
Parents
Child
Siblings
Nurse
100
The leading health problem in the United States.
What is chronic illness?
100
Caregiver behaves as though the condition does not exist and encourages the child to overcompensate for any disability.
What is denial?
100
A child may percieve an illness as ______ for a bad thought or action depending on the child's developmental stage at the time of diagnosis.
What is punishment?
100
A siblings mark of embarrassment or shame, especially if the ill child has a physical disfigurement or apparent cognitive deficit.
What is stigma?
100
When child is hospitalized, consider arranging for contact with peers by phone, in writing, or through visits. Encourage regular school attendance as soon as the child is physically able. Ask the child about interests. Make suggestions and confer with family caregivers to ensure that proposed plans are carried out.
What are ways to prevent social isolation?
200
Payment for treatment, living expenses, caregivers job loss.
What is financial concerns for family with a chronically ill child?
200
A caregivers response to try to protect the child at all costs, hovering, failure to use discipline, and preventing the child from experiencing any frustration.
What is overprotection?
200
The child's family, peers, and school personnel.
What is a support system?
200
Anger, hostility, jealousy, increased competition for attention, social withdrawal, poor school performance.
What are possible negative reactions of a sibling to a chronically ill child?
200
Encourage the child and family to share feelings concerning the child's illness, support by listening and providing appropriate interventions, and be aware of individual needs and abilities to cope with the illness.
What is the role of the nurse?
300
A condition of long duration or one that progresses slowly, shows little change, and often interferes with daily function.
What is a chronic illness?
300
Caregivers who distance themselves emotionally from the child and tend to scold and correct the child continuously while continuing to provide physical care.
What is rejection?
300
Being stared at in public and social exclusion of the chronically ill child.
What is discrimination?
300
Caring and concern for the ill sibling, cooperating with family caregivers, helping care for the ill child, protecting the ill child from negative reactions of others, and including the ill child in activities with peers.
What are possible positive behaviors of a sibling to a chronically ill child?
300
Explain the test, treatments, and procedures to the child ahead of time, encourage the child to ask questions, acknowledge that a particular procedures is painful and plan ways to help him/her cope with the pain, and advise family caregivers that they should also help the child prepare ahead of time if possible.
What are ways to reduce anxiety about the procedures and treatments?
400
Disruptions of vacations, family goals, and careers.
What are affects on family life for those with chronically ill children?
400
Care given to the ill child so caregivers can have a period of rest and refreshment.
What is respite care?
400
This affects the child's attitude and motivation to participate in self-care activities.
What is the family caregivers response to the illness?
400
This often creates feelings of guilt in healthy children.
What are effects of family caregivers overemphasizing the ill child's needs in siblings?
400
Focus plans for care at home on the continuing care, medicatoins, and treatments the child will need. Demonstrate use of special equipment and treatments, and allow the caregivers to perform treatments under guidance and supervision of the nurse. Provide the caregivers a list of community services and organizations that they can turn to for help and support. Evaluate the homes facility for any special home needs.
What is ways to plan for home care?
500
Congenital heart disease, cystic fibrosis, juvenile arthritis, asthma, hemophilia, muscular dystrophy, leukemia, other malignancies, spina bifida, immunodeficiency syndromes.
What is diseases that cause chronic illness in children?
500
Common sense approach to the child's condition. Help the child to set realistic goals for self care and independence and encourage to the child to achieve social and physical skills within his/her capability.
What is gradual acceptance?
500
steroid-induced acne, edema, alopecia.
What is possible side effects of chemotherapy and radiation for Hodgkin disease?
500
Find time for special activities with healthy children, explain the ill child's condition as simply as possible, involve the healthy siblings in the care of the ill child according to his/her developmental ability, and set behavioral limits for all children in the family.
What are ways of helping siblings cope with a child with a chronic illness?
500
Devise assistive devices to ease tasks, integrate toys and play into care to help encourage cooperation, make sure the child is well rested, praise and reward the child for task attempted, even if they are not totally completed.
What are ways to promote self care?