Khan Quiz
Karan Arjun
Inspiring story of Ishaan, an 8-year-old suffering from dyslexia.
Taare Zameen Par
Who recently organised a Zoom meet-up / Chai pe Charcha for all patients on the group?
Tushar
What is the full form of the term 'AFO' in the context of patients living with GNE myopathy.
Ankle Foot Orthosis
“Dosti Ka Ek Oosul Hai Madam… No Sorry, No Thank You”
Maine Pyaar Kiya
A girl who has autism and a boy who cannot hear fall in love with each other. Ranbir Kapoor and Priyanka Chopra
Barfi
Which member of our group is a celebrity (appears on many TV shows and frequently writes newspaper articles) financial services professional?
Rushabh Desai
What is the name of the drug being developed for which a clinical trial is currently ongoing for GNE myopathy in the US?
N-acetyl-D-Mannosamine (ManNAc)
“Log kehte hai khoobsurat ladkiyan jab jhoot bolti hain, toh aur bhi khoobsurat lagti hain”
Hum Apke Hain Kaun
The movie depicts the health condition of Progeria (early aging).
Paa
Who won the quiz at the WWGM Annual Conference 2021?
Suraj
Who was one of the first scientists to have discovered GNE myopathy after whom the disease was also named?
Nonaka
“Life mein teen cheezon ke peeche khabi nahi bhagna chahiye… Bus, train aur chokri… Ek gayi doosri aati hai, doosri jaati hai, teesri aati hai”
Ishq
It’s the story of Laila (played by Kalki Koechlin) who is suffering from Cerebral Palsy.
Margarita With A Straw
Which member of our group recently posted a picture of a motorbike trip to Leh/Ladakh?
Sunil Mehta
What category of muscles are said to be spared or relatively unaffected in GNE myopathy?
Quadriceps