Palliative Care
Palliative care is only for patients who are actively dying: True or False
What is False? Palliative care is for anyone with a life-limiting or life-threatening condition
As with many services, palliative care lacks this resource
What is money?
This is the most common symptom reported by children with life-limiting and life-threatening illnesses
What is pain?
Pediatric palliative care teams provide services for the patient, their parents, and these members of the family
Who are siblings?
Children are often the first to know and initiate discussions about this
What is dying?
The primary goal of palliative care is to improve this three-word phrase.
What is Quality of Life?
Possibly the most pervasive barrier to palliative care is this
What is stigma/misinformation?
A pediatric palliative care team provides this type of care, which includes physical, psychological, emotional, and social wellbeing.
What is holistic?
Pediatric palliative care often recommends this service for the entire family when a child has a life-threatening illness
What is family counseling?
This type of care follows after a child has died and is provided by a palliative care service
What is bereavement care?
Palliative care is a type of specialty care that is standardized for all patients: True or False
What is False? Palliative care is not standardized, but individualized to each patient's and family's specific needs
Nurses identify this as the most impactful barrier to providing palliative care
What is education?
Pediatric palliative care enhances this between children and their families
What is communication?
Pediatric palliative care can help parents with this process, as it relates to their child's care and practical issues
What is decision-making?
Pediatric palliative care services can often help families with planning and financing for this
What is funeral proceedings
Palliative care allows this person to be involved in communication surrounding diagnosis, prognosis, and treatment
Who is the child?
Families of children with life-threatening conditions often state discomfort with conversations about this as a reason for avoiding palliative care
What is death and dying?
Pediatric palliative care can be provided in the hospital, at a hospice facility, or here, where a child is often most comfortable
What is home?
Parents who lose a child often report this as the most difficult part to cope with
What is the loss of potential/what could have been?
This is the most helpful resource that a pediatric palliative care team can provide to grieving families, and it is only currently offered by St. Jude
Who are bereaved parent mentors?
This is the number of developed, fully functioning pediatric palliative care services in the United States.
What is 2? St. Jude (The QoLA Team) and CHOP
Research shows that dissemination about this is a major facilitator for implementing pediatric palliative care
What is positive experiences?
Pediatric palliative care helps children learn this process, which makes living with a chronic illness a little easier
What is coping?
Pediatric palliative care often coordinates with child life services to create this, something left behind for the families when a child dies
What is a legacy?
St. Jude hosts this event each year to honor the children who were lost in the previous year, and allow their families and care teams to reunite
What is Day of Remembrance?